Living without a diagnosis

A symptom tracker for when nobody has given it a name yet

A chronic illness tracker and gentle companion that already knows what undiagnosed symptoms can involve — so you do not have to explain it from scratch.

What undiagnosed symptoms can involve

Many people live for months or years with symptoms that are real, disruptive and unnamed. Tests come back normal, referrals take time, and each new appointment seems to start from the beginning. Fatigue, pain, dizziness, brain fog and digestive problems are among the things people most often describe while they wait, and they rarely arrive one at a time.

Not having a diagnosis does not make any of it lighter. It does make it harder to talk about, because there is no single word to hand over. taluvu has a home for people in exactly this position: choose it alongside anything else you live with, and keep the record in your own words until the name, if there is one, catches up.

1 in 4 people in the UK wait at least 3 years between first symptoms and a confirmed diagnosis of a rare condition.
Source: Genetic Alliance UK

How a day can feel

If your days sound anything like this, taluvu was made with you in mind.

  • “I know something is wrong. I just cannot prove it yet.”
  • “Every test comes back normal and I feel worse.”
  • “I have stopped mentioning things in case it sounds like too much.”
  • “Each new doctor starts from the beginning.”
  • “Not having a name for it does not make it any lighter.”

These are the kinds of things taluvu invites you to say in your own words — never a checklist of what anyone “should” have.

What taluvu helps you keep track of

Choose Undiagnosed symptoms and it starts you with a palette, not a blank form.

These are things people living with undiagnosed symptoms often want to keep an eye on. Remove any you do not need, add your own, and check in with a few taps on the days you have very little to give.

  • Fatigue
  • Pain
  • Brain fog
  • Dizziness
  • Nausea
  • Sleep problems
  • Headache
  • Low mood
  • A journal in your own words, not a score
  • A plain-English week view of what stands out
  • A Doctor Summary you own and can print
  • Your care team’s details in one place

taluvu never claims one thing caused another. It shows what is worth noticing and leaves the medicine to your doctor. See how a check-in works.

A calm, colour-coded week view of someone's health story in taluvu, showing gentle patterns rather than a raw score.

Trusted information and support

Places we point people to for undiagnosed symptoms.

The same sources and communities taluvu links to inside the app. They are independent of us; please check anything important with your own care team.

Information sources

Communities

Questions people ask

Undiagnosed and taluvu, in plain answers.

Short, honest answers about what taluvu does and does not do for undiagnosed symptoms. Nothing here is medical advice.

Can I use taluvu without a diagnosis?

Yes. taluvu has a home built for people who do not yet have a name for what is happening. Choose it on its own or alongside any other condition, and the app starts you with a palette of the things people most often live with while they wait, then lets you add your own.

What should I track if I do not know what is wrong?

Whatever is actually happening, in your own words. How the day felt, which symptoms showed up, what you were doing, what helped. You do not need to know what it means to write it down. Over weeks, the record shows what repeats, which is often more useful to a clinician than any single symptom.

Will taluvu tell me what condition I have?

No. taluvu is not a medical device and does not diagnose anything. It never claims one thing caused another. It shows what is worth noticing in plain words and leaves the interpretation to your doctor. What you notice is worth raising; what it means is theirs to say.

How does a record help when tests keep coming back normal?

A normal test result describes one moment. A record kept day by day describes the months around it. The Doctor Summary turns your own notes into something you can read out or hand over, and it counts the days you did not record anything rather than pretending they went well.

Getting taluvu

Carry undiagnosed symptoms with a little more company.

taluvu is an iPhone app. A membership comes with a free trial, and the price and terms are shown in full before you are ever asked to pay.

Download on the App Store See how taluvu helps See a real Doctor Summary

Other conditions

taluvu understands more than one thing at once.

Over a hundred conditions are built in, including living without a diagnosis yet. Choose as many as apply.

taluvu is not a medical device and does not provide medical advice, diagnosis or treatment. Nothing on this page is a substitute for advice from your own doctor or care team. taluvu helps you organise and describe your own experience — see the Medical & AI Disclaimer.

If you are in crisis or need urgent help, contact your local emergency services or a crisis line. In the UK, call 999 in an emergency, NHS 111 for urgent advice, or Samaritans free on 116 123.