Living with interstitial cystitis

An interstitial cystitis symptom tracker for a bladder that never settles

A chronic illness tracker and gentle companion that already knows what interstitial cystitis can involve — so you do not have to explain it from scratch.

What interstitial cystitis can involve

Interstitial cystitis, also called bladder pain syndrome, produces the symptoms of a urine infection without the infection. Pain that builds as the bladder fills, urgency, needing to go constantly, and waking through the night. Because the tests come back clear, many people are treated for infections repeatedly before anyone uses the right name.

It shapes a day quietly and completely: how far you will travel, how long a meeting can be, whether you drink anything before leaving the house. Recording frequency and night waking as they happen gives a urologist or GP something firmer than an estimate, and gives you something to point at when tests keep coming back normal.

How a day can feel

If your days sound anything like this, taluvu was made with you in mind.

  • “It feels like an infection that never goes away.”
  • “I know where every toilet is, everywhere I go.”
  • “They treated me for cystitis over and over.”
  • “Nights are broken and the days pay for it.”
  • “I stopped drinking before going out, which is its own problem.”

These are the kinds of things taluvu invites you to say in your own words — never a checklist of what anyone “should” have.

What taluvu helps you keep track of

Choose Interstitial cystitis and it starts you with a palette, not a blank form.

These are things people living with interstitial cystitis often want to keep an eye on. Remove any you do not need, add your own, and check in with a few taps on the days you have very little to give.

  • Bladder pain
  • Urgency
  • Needing to go often
  • Pain as the bladder fills
  • Waking at night to go
  • Pelvic pain
  • Fatigue
  • A journal in your own words, not a score
  • A plain-English week view of what stands out
  • A Doctor Summary you own and can print
  • Your care team’s details in one place

taluvu never claims one thing caused another. It shows what is worth noticing and leaves the medicine to your doctor. See how a check-in works.

A calm, colour-coded week view of someone's health story in taluvu, showing gentle patterns rather than a raw score.

Trusted information and support

Places we point people to for interstitial cystitis.

The same sources and communities taluvu links to inside the app. They are independent of us; please check anything important with your own care team.

Information sources

Communities

Questions people ask

Interstitial cystitis and taluvu, in plain answers.

Short, honest answers about what taluvu does and does not do for interstitial cystitis. Nothing here is medical advice.

Is taluvu an interstitial cystitis tracker?

Yes. Interstitial cystitis is built into taluvu with a starting palette of bladder pain, urgency, needing to go often, pain as the bladder fills, waking at night, pelvic pain and fatigue. You can add anything else you live with.

Can I record how often I am up at night?

Yes. You can note night waking at check-in, so the count comes from a record rather than a guess. It is one of the questions a urology clinic asks, and one of the hardest to answer accurately weeks later.

Does taluvu work out which foods affect my bladder?

No. taluvu does not identify triggers or claim one thing caused another. You can write down what you ate and what followed, and read it back yourself, but any conclusion belongs to you and your clinician.

Is a record useful when tests keep coming back clear?

That is often when it is most useful. A clear test describes one moment; a record kept day by day describes the months around it. The Doctor Summary turns your own notes into something you can hand over.

Getting taluvu

Carry interstitial cystitis with a little more company.

taluvu is an iPhone app. A membership comes with a free trial, and the price and terms are shown in full before you are ever asked to pay.

Download on the App Store See how taluvu helps See a real Doctor Summary

Other conditions

taluvu understands more than one thing at once.

Over a hundred conditions are built in, including living without a diagnosis yet. Choose as many as apply.

taluvu is not a medical device and does not provide medical advice, diagnosis or treatment. Nothing on this page is a substitute for advice from your own doctor or care team. taluvu helps you organise and describe your own experience — see the Medical & AI Disclaimer.

If you are in crisis or need urgent help, contact your local emergency services or a crisis line. In the UK, call 999 in an emergency, NHS 111 for urgent advice, or Samaritans free on 116 123.