Living with hypermobility

A symptom tracker for hypermobile EDS and hypermobility spectrum disorder

A chronic illness tracker and gentle companion that already knows what hypermobility and EDS can involve — so you do not have to explain it from scratch.

What hypermobility and EDS can involve

The Ehlers-Danlos syndromes are a group of inherited conditions affecting connective tissue — the collagen that supports joints, skin and blood vessels. Hypermobile EDS (hEDS) is the most common type, and hypermobility spectrum disorder (HSD) describes symptomatic hypermobility that does not meet the hEDS criteria. Both can involve joints that move too far or slip, chronic pain, fatigue, dizziness, digestive symptoms and easy bruising.

Because a different joint takes its turn each week, and because so much of it is invisible, people wait an extraordinarily long time to be believed. Writing down which joint, which day and what it cost you turns a vague history into something a clinician can act on.

A national survey of over 2,000 people found those with hypermobile EDS, or a related hypermobility disorder, waited an average of around 20 years for a diagnosis.
Source: University of Edinburgh

How a day can feel

If your days sound anything like this, taluvu was made with you in mind.

  • “Something moves that should not move.”
  • “I brace constantly, and I am worn out from bracing.”
  • “Every new thing turns out to be connected to it.”
  • “Being called bendy like it is a party trick wears thin.”
  • “A different joint takes its turn each time.”

These are the kinds of things taluvu invites you to say in your own words — never a checklist of what anyone “should” have.

What taluvu helps you keep track of

Choose Hypermobility and EDS and it starts you with a palette, not a blank form.

These are things people living with hypermobility and EDS often want to keep an eye on. Remove any you do not need, add your own, and check in with a few taps on the days you have very little to give.

  • Joint pain
  • Dislocations or subluxations
  • Fatigue
  • Dizziness
  • Digestive problems
  • Easy bruising
  • Stretchy or fragile skin
  • Slow healing
  • A journal in your own words, not a score
  • A plain-English week view of what stands out
  • A Doctor Summary you own and can print
  • Your care team’s details in one place

taluvu never claims one thing caused another. It shows what is worth noticing and leaves the medicine to your doctor. See how a check-in works.

A calm, colour-coded week view of someone's health story in taluvu, showing gentle patterns rather than a raw score.

Trusted information and support

Places we point people to for hypermobility and EDS.

The same sources and communities taluvu links to inside the app. They are independent of us; please check anything important with your own care team.

Information sources

Communities

Getting taluvu

Carry hypermobility and EDS with a little more company.

taluvu is an iPhone app. A membership comes with a free trial, and the price and terms are shown in full before you are ever asked to pay.

Download on the App Store See how taluvu helps See how taluvu helps See a real Doctor Summary

Coming to the App Store for iPhone — it is with Apple for review now.

Other conditions

taluvu understands more than one thing at once.

Over a hundred conditions are built in, including living without a diagnosis yet. Choose as many as apply.

taluvu is not a medical device and does not provide medical advice, diagnosis or treatment. Nothing on this page is a substitute for advice from your own doctor or care team. taluvu helps you organise and describe your own experience — see the Medical & AI Disclaimer.

If you are in crisis or need urgent help, contact your local emergency services or a crisis line. In the UK, call 999 in an emergency, NHS 111 for urgent advice, or Samaritans free on 116 123.