A symptom tracker for hypermobile EDS and hypermobility spectrum disorder
A chronic illness tracker and gentle companion that already knows what hypermobility and EDS can involve, so you do not have to explain it from scratch.
What hypermobility and EDS can involve
The Ehlers-Danlos syndromes are a group of inherited conditions affecting connective tissue, the collagen that supports joints, skin and blood vessels. Hypermobile EDS (hEDS) is the most common type, and hypermobility spectrum disorder (HSD) describes symptomatic hypermobility that doesn't meet the hEDS criteria. Both can involve joints that move too far or slip, chronic pain, fatigue, dizziness, digestive symptoms and easy bruising.
Because a different joint takes its turn each week, and because so much of it is invisible, people wait an extraordinarily long time to be believed. Writing down which joint, which day and what it cost you turns a vague history into something a clinician can act on.
A national survey of over 2,000 people found those with hypermobile EDS, or a related hypermobility disorder, waited an average of around 20 years for a diagnosis.
Hypermobility & EDS symptoms checklist to take to your GP
Tick what applies to you, note how often it happens, and take it to your appointment, so the conversation starts further along. It describes your experience. It does not say what is causing anything: ticking most of these does not mean you have Hypermobility & EDS, and ticking a few does not mean you do not. Only a clinician can work that out with you.
The list comes from the NHS and charity sources linked further down this page, and from what people living with hypermobility and EDS tell us they keep an eye on. It is a starting point, not a test.
How a day can feel
If your days sound anything like this, taluvu was made with you in mind.
“Something moves that shouldn't move.”
“I brace constantly, and I'm worn out from bracing.”
“Every new thing turns out to be connected to it.”
“Being called bendy like it's a party trick wears thin.”
“A different joint takes its turn each time.”
These are the kinds of things taluvu invites you to say in your own words, never a checklist of what anyone “should” have.
What taluvu helps you keep track of
Choose Hypermobility and EDS and it starts you with a palette, not a blank form.
These are things people living with hypermobility and EDS often want to keep an eye on. Remove any you do not need, add your own, and check in with a few taps on the days you have very little to give.
Joint pain
Dislocations or subluxations
Fatigue
Dizziness
Digestive problems
Easy bruising
Stretchy or fragile skin
Slow healing
✎ A journal in your own words, not a score
◔ A plain-English week view of what stands out
▤ A Doctor Summary you own and can print
☏ Your care team’s details in one place
taluvu never claims one thing caused another. It shows what's worth noticing and leaves the medicine to your doctor. See how the symptom tracker app works.
Trusted information and support
Places we point people to for hypermobility and EDS.
The same sources and communities taluvu links to inside the app. They're independent of us; please check anything important with your own care team.
About this page: Published by taluvu and checked against the independent sources linked above on 27 September 2026. It has not been medically reviewed and is not medical advice. How we write and check these pages.
Questions people ask
Hypermobility & EDS and taluvu, in plain answers.
Short, honest answers about what taluvu does and does not do for hypermobility and EDS. Nothing here is medical advice.
Does taluvu work for hEDS and hypermobility spectrum disorder?
Yes. Hypermobility and EDS are built in, with a starting palette of joint pain, dislocations or subluxations, fatigue, dizziness, digestive problems, easy bruising, stretchy or fragile skin and slow healing. Remove what doesn't apply and add whatever does.
Can I note which joint was affected?
Yes. Every check-in has room for a line in your own words, so you can say which joint, what it did and what it cost you. Because a different joint takes its turn each week, a record that names them is what turns a vague history into something a clinician can act on.
Can I track PoTS or IBS alongside EDS?
Yes. Over a hundred conditions are built in and you can choose several at once. Many people with hypermobility also live with PoTS, IBS or migraine, and taluvu keeps one record across all of them rather than making you switch between apps.
Is taluvu a replacement for my rheumatologist or geneticist?
No. taluvu is not a medical device and does not diagnose, treat or give medical advice. It helps you organise and describe your own experience so that appointments start from a clearer place.
Getting taluvu
Carry hypermobility and EDS with a little more company.
taluvu is a chronic illness tracker for iPhone and for your web browser. Each one is a separate membership with a free trial, and the price and terms are shown in full before you're ever asked to pay.
Taluvu Chronic Illness Tracker
TALUVU LTD · Health and Fitness · iPhone
Free to download, with a Taluvu Pro subscription inside
Taluvu Chronic Illness Tracker
TALUVU LTD · Health and Fitness · Computer
Start with a free week of Taluvu Pro, in your web browser
These pages cover experiences that can sit alongside hypermobility and EDS. They are here to help you organise what you notice, not to suggest a diagnosis.
taluvu is not a medical device and does not provide medical advice, diagnosis or treatment. Nothing on this page is a substitute for advice from your own doctor or care team. taluvu helps you organise and describe your own experience. See the Medical & AI Disclaimer.
If you are in crisis or need urgent help, contact your local emergency services or a crisis line. In the UK, call 999 in an emergency, NHS 111 for urgent advice, or Samaritans free on 116 123.
